and cue cramps...

I think that my interstim only acts up when i have my period?!? it spasms like a couple days before .. weird?!?! but my dr said it makes sense since i have IC and Endo... umm yea idk about that... anyone else know?

This will be my second period since luperon (excuse the sarcasm)- YEAH! woot woot... well the cramps have begun so lets see if my monthly friend appears tomorrow which for some reason mine always appears on a wed?

But i hv sharp pains beginning...

wow its been a while...

OK so i have almost let life pass me by without blogging.. hahaha... WELL I have had great and bad days! But last 2 days i have horrible days with these horrible spasms coming from my implant... Dr vosough says my interstim implant may have to come out... UGHHHHH that means another surgery?!?!

Life with Interstim

My Dr suggested i have a device called Interstim installed into my bladder .. there really is no info out there to tell you really about it... i was REALLY skeptical but im glad that i did it... now i can tell the difference between a UTI and my endo pains. Although the procedure was a little scary but in all i'm glad i did it! I have to say i have at least a 75% improvement in pain.. its a little overwhelming at first but its really helped me to understand what its like to go somewhere and not have to look frantically for the toilet before i sit down LOL. and I was able to drive 3 hours with out stopping every 20 mins. (AMAZING).

This is Me and My Life

I started all my symptoms as early as 14 but all my life everyone told me i was crazy; I always got sick over nothing! ... The same song and dance: "pain i was describing they had never heard of and it was normal to have a period like i had"... which im sure all women with Endometriosis have heard... so when i was 18-well basically now 24 i cannot even tell you how many times i ended up in the ER with cysts or ruptured cysts and the sorts but no one ever suspected a thing wrong... then last june i was rushed to he ER and well suprise suprise, i had 5 ruptured cysts and my gyn was a total jerk about it... i was sent home with pain meds a couple of hours later... that same summer i got a period lasting almost a month in which i lost so much blood i was on the border line of needing a transfusion... ended up going to a new gyn... (who my the way is amazing he was the one that actually has been fighting for me ever since) ... he supsected endo from the first visit... so we tried many different methods to get the pain under control as well as the constant UTIs ( had 7 in total in 2009). Finally i had enough and scheduled a lap... but ended up in the ER about three weeks before with a majorly elevated white blood cell count ( over 18,000), after a billion tests and a week in the hospital they had to do an emergency lap (Dec 11,2009) and yes stage 4 endo.... was given luperon and the works... i felt like superwomen for a mth and then boom pain is back and more agressive... ended up in the ER end of Feb was bleeding like crazy was hospitalized for 8 days and they couldnt find any other medical reason except for endo? so another emergency op (Feb 26, 2010) and they removed my appendix also... After all this craziness the pain persisted and i was officially diagnosed with the evil triplets of endo.. -PCOS, IC and Endometriosis as well as fibromaylsia. Because of Urinary Inconsistence i Had a Surgery to have in Interstim device installed (May 17, 2010). It's been a constant Battle so I have decided to make a blog about it.. so that all women with this disease can step up and be known :)